RSS Feed

Tag Archives: sandwich generation

I’m still here. Only with lower standards.

Don’t expect much. I’m only sitting here typing because I made a deal with myself. I would write something, anything, and if I did then I could have a spoonful of peanut butter. Of course, who am I kidding, I’ve already had three already today. But I’m using this contrived bargaining chip, and low and behold, results! I have completed four and a half lines so far.

It has been so long since I have even attempted to write that my mind has lost the feel for it. My thoughts are slow to form and my fingers are equally lethargic. I took both a voluntary and involuntary break this past January.  Involuntary because my husband was in the process of switching offices and while he waited for his new offices to be finished, he commandeered my work space. Voluntary because I had just completed a new fiction novel. One that I was – I mean am – pretty excited about. Jam packed with sex, murder and little league baseball politics, it’s a total homerun. (My apologies for the lame humor. The brain isn’t quite sharpened yet.) Anyway, after finishing it, I was spent, and didn’t mind the brief reprieve, until days turned into weeks which turned into months. Soon my office had multiple screens up, projecting law documents and memorandum. His files overtook my random papers of creative thought and soon I couldn’t find a bit of myself in the corporate takeover of my writing space.

At about the same time, my father took a dip in the deep end of the depression pool, and while this is far from uncommon, sometimes when my guard is lowered, my resistance down and my hormones up, it weighs on me as heavily as the ice cream I wind up eating too much of. Each trip to the pool is unique and this time he wasn’t flailing around as usual, grasping at anyone (me) to save him. No, this time he sank slowly, barely making a wave. I stopped reading, and it being winter, confined myself to hibernation, keeping busy with all the uber-important details that a mom of three growing boys must tend to, mainly doing the laundry for them to kick across their floors, schlepping them to and from school and fields while they ignore me on their phones, and preparing meals for their lackluster review. With the husband busier than ever and no mental stimulation to distract, the water seemed to rise around me as well.

But that was then. Now, I’ve spent the last few weeks diligently nudging myself toward a better frame of mind. I’ve embraced the sun (when it shines) and use it to lure me from my shell. I have started reading again. First a book called, The Art of Hearing Heartbeats, a truly lovely romantic fable with so much sweetness that it gave my dark brain an attack of the eye rolls. But then a friend handed me, I Am Pilgrim, a detective thriller that has me electrified and turning pages at lightning speed. It has been a gift, offering both escape and inspiration.

I now occasionally catch myself contemplating what to do with my new manuscript, while mulling over potential freelance essays on the new dynamic of parenting my first born teenaged son, the recent birthday of my mother (No she’s not 70!) or how the girl next to me in my gym class achieved such an amazing ass. I mean really people, it’s essay worthy.

I even remembered that I have a blog. So you see, I’m slowly wading over to a safer place. But I don’t want to overexert myself. I’ve accomplished what I set out to do. I sat here, rubbed the sleep from my brain and rambled on a bit. It’s a start. I think I earned my reward.

IMG_5690

Okay, so I took two spoons. But it’s kind of like therapy. Protein is good for the brain, right?! I actually think I’m going to need another one to hit publish. I forgot how stressful this was! Okay, here goes… 

Striking out (with Dad)

He didn’t hobble toward ball field number two; he shoved his walker with purpose. Even tilted, he looked pretty good; eyes alert, dress casual and passably clean, disposition aloof but present. After three weeks in New York and countless years fantasizing about it, he finally felt well enough to make one of my boys’ baseball games.

“You gotta swing when it’s 3 and 2, kid!” he yelled at some boy I didn’t know, garnering a dirty look from some boy’s father.

I grimaced. “Dad, maybe keep your enthusiasm for the members of our family, please.”

He smiled,” clearly amused by himself. “Yeah, that guy didn’t appreciate my comment.”

This was the best I had seen my father in a long time and I tried without much success to appreciate the moment.

These last weeks have been enormously stressful. Applications for disability, transportation services and a downstairs unit had to be filled out, the right doctors found, Medicaid benefits approved to secure home health aides, visiting nurses and blah blah blah. We stand at the foot of a mountain of paper work, details and calls not returned.

But by far the biggest challenge is him.

He accidentally flooded the woman’s apartment below him by letting his sink overrun. Then he accidentally did it again. He accidentally pulled the emergency cord in the bathroom. He was confrontational with the nurse practitioner who came to help set up his medications. He didn’t go down to let in another NP.

Never ending, exhausting conversations saturate every space between the dramas. Pep him up, talk him down, find reasons for him to live. Be the happy voice, the scolding voice, the voice of reason. Even thinking about it makes my throat constrict.

Yet right now, he seems okay – his glassy eyes light as he watches the game, my other boys shyly stand near him and engage, he abandons his walker to hold on to the fence.

“Nice catch!” He yells to my son then turns to me, “Do you see the way he throws? He’s got confidence.”

I nod, glad that after weeks passed out in his chair, he’s found his voice and it’s not angry or miserable. It’s cheering.

Maybe we’ve turned a corner. Maybe it’ll be alright.

I allow just the smallest, tiniest, most miniscule molecule of hope to slip in, although at this point I don’t know how it’s even possible. Hope is a sneaky bastard.

The next morning social services call. They had just seen my father and found him extremely agitated and hostile with pills scattered everywhere. They regret to inform me that “mobile crisis” has been alerted and are on the way.

Maybe this is where it ends. Maybe it’s for the best.

At least he made it to a game.

My happy cage

hopeless

Pop (Moving dad, part 2)

My father slumps over to the left side of the new recliner. His head and body tilt in a way that looks uncomfortable but still he sleeps. He’ll tell anyone who asks that he prefers unconsciousness rather than deal with the pain he’s in. I wonder about that as I watch him snoring contentedly. Clearly, he suffers. No one who sees him would think otherwise, but the uncertainty lingers whether this former alcoholic and drug addict has found validation for his pharmaceutical dependency with his broken body and spirit. I know I don’t walk in his shoes but it’s hard when he’s tripping over his own feet and landing on my doorstep.

This new move to be closer to his family, which is me, my brother and my mother, his ex-wife of nearly 35 years, has been years in the making and years in the breaking. The two bridges between us allowed him to live somewhat independently and allowed me to somewhat believe that he could. But now that we have crossed over, there’s no going back and there’s no more pretending.

Large windows brighten the living and bedrooms of his new apartment and the scent of fresh paint lingers. There’s a new couch, television and media center. His hoard of books, tapes, papers and the clutter of a million misaligned brain cells have been left back in New Jersey in this hope for a fresh start, this last attempt at happiness. But seeing him lying there half unconscious with the garden burger he fell asleep while eating hanging limp in his hand;  a small clump of mashed grains, corn and peas probably still waiting in his mouth to choke him or be swallowed, it looks to me like the same problem nicer chair.

When my mother and I test drove the dark brown cushy recliner in the store, we giggled as we pushed a button to gently stretch us back while lifting our legs up, immediately luxuriating in relaxation. It was perfect, we assured each other, thinking he’d love it but not realizing he’d barely leave it.

Now only weeks in, it bears the burden of his physical and mental weight; food staining the arm rest, crumbs resting in the crevices, urine dampening the seat. It is as sullied and doomed as this well-meaning but misguided attempt at a new life.

Back home in my office, I wish I could also just push a button, recline and hide in unconsciousness as I shuffle through papers and field calls from doctors and agencies, all trying to help me help him. The process is arduous, tedious and a little maddening but every conversation hopefully gets me closer to securing a doctor or a home health aide or benefits. It is a puzzle with a million pieces and he sits in the center.

Through the window I watch my boys on roller blades, their newest obsession. My 7 year old has discovered some old bubbles on the porch and blows spit at the stick as he skates around like a puppy. Every so often a cluster of bubbles emerge startling him, flying like rainbows through the air. He delights in his creation, beaming with wonder, and his brothers join him, scooting around trying to pop them. The sun shines, the grass is green and I hope their bubbles never burst.

IMG_0311

Moving Dad

“This is a new life. I want it,” I say to my father who is racked with nerves. “Say it,” I insist.

“This is a new life. I want it,” he repeats dutifully, like a child.

It is the night before his big move from New Jersey to Long Island to be closer us. Even though he lobbied for this, stress emanates from him like the hairs on a caterpillar. He’s so charged, he’s electric.

My doorbell rings and rings and rings interrupting us. It is my husband and two younger boys coming home from the park. My youngest son pokes his big happy face in the side window. His smile is as wide and unrestrained as the curly hair bursting from the sides of the helmet covering his head. He has been practicing on his new roller skates. I open the door and put a finger to my lips. He nods in understanding still beaming, and awkwardly stomps and slides his way to me for a hug to keep from falling down while simultaneously lifting my spirits.

Weeks ago I asked my father to fill a single box with books or tapes that he felt he couldn’t live without, not an easy task for a hoarder.

“Can I have 3 boxes?” He bargained.

“Yes, but let’s start with 1.”

“How about five, can I have five boxes?”

“Probably, but let me see you fill one.”

Yet instead of filling even one box, he spent the weeks negotiating over how many boxes he could take, and then working on stuff to give away. Now the night of the move, he has not packed a single thing. It’s no skin off my nose. His place is a cluttered shit hole. The more stuff he takes, the faster this new place will become a cluttered shit hole.

“Dad, you don’t need those things anymore. Let’s start fresh.”

“But collecting these things is all I’ve accomplished. I know it’s small but it matters.”

He’s regretful, but thankfully still sounds rational and lucid.

“You’ll find new things that matter,” I say looking out the window where my middle son and husband catch the last bits of day tossing the ball back and forth to each other on my overgrown lawn.

“I need to find a purpose. I have no purpose.” He laments. “And I can’t fill these boxes. It’s too hard. It’s too painful.”

“I know,” I soothe, unsure where my new found zen is coming from. I’ve spent these weeks gaining weight, spouting grey and blooming cold sores as I called social services, doctors, and advocates for the elderly. We are blindly jumping ship which isn’t great when you haven’t secured your lifeboat.

“Don’t worry. I’ve bought you all new things. You’ll have everything you need.”

I walk past the computer room where my oldest practices his Haftarah for his upcoming Bar Mitzvah. His sweet voice swells with such beauty and hope I could cry.

“This is a new life,” my father repeats the mantra, trying to muster some enthusiasm, “I want it.”

I look around at the love that is here and think that if this doesn’t put joy in his heart nothing will.

“Good.” I confirm. “Because tomorrow it begins…”

Ready or not... Here he comes.

Ready or not… Here he comes.

The road I didn’t want to travel

I stand at a crossroad.

There is no surprise. For years I pretended not to see it, concentrating on my own road full of twists and turns, dips and potholes; distracted by precious cargo, flowers blooming along the path and long easy stretches walking in the sun.

But now a new direction looms before me. It is dark and unknown, filled with landmines and difficult terrain. In fact there’s a glaring neon sign screaming, “WRONG WAY!” Yet, here I go, right or wrong, ready or not.

LEAP!

Even though it’s cloudy and hard to see, I continue on, reckless and hopeless trying to find my way. The rain pours down and I am in uncharted territory, lost and scared. Oh my God, what was I thinking moving my father from NJ to NY?! I spent forever getting him set up with all those benefits and a home health aide who does all the stuff I don’t want to do!

But, at least he’s not two bridges away.

Oh my GOD he’s not two bridges away! He’s going to be right here!

Air. I need air! ARGH!!! Who put this walker in front of me! F%*#&!@!

Wait… that’s why we’re moving him. So he can be closer. It’s a good thing. It’s a good thing. It’s a good thing. It’s a good thing. It’s a good thing. It’s a good thing. It’s a good thing. It’s a good thing.

There are just So. Many. Doctors.

Internist, cardiologist, gastroenterologist, podiatrist, vascular, dermatologist, psychiatrist, neurologist, oncologist, pain management…

Who are just So. Done. With. Him. He needs new ones.

Oh jeez! I have to find new ones!

Tape, red and hot, strangling me. Can’t breathe.

No! I will fight my way through, battle social services, find a kind, reliable and capable new home health aide. I’ll get the benefits straightened out and, and, I won’t even look at the mountain in front of me. I’ll just keep climbing up up up.

Get him packed and moved. Buy a ton of new (nice) shit (that he will destroy). Organize everything. Make sure we find the right person to manage his meds.

Don’t think. One step at a time. Call electric, cable, phone, movers.

Social services. Advocates for the aging. Medicaid.

Things will get done. We have already made some progress.

The rain drizzles down but the storm cloud lifts just a little. Even though it is dark, the mood has lightened, brightening the landscape. I can still make out the blur of the neon sign flashing ominously in the haze but there’s no turning back now. For better or for worse we are on this new road.

Maybe, just maybe we are headed in the right direction.

I hope I’m wearing good shoes.

Gee, this road looks pretty. Lets go this way!

Gee, this road looks pretty. Lets go this way!

Guilt – Chocolate and Family

My husband must feel really guilty about not stopping to get me ice cream last night because now, driving back home after a week of vacation, three days in Washington DC, trekking our boys from monument to monument, in and out of museums where their glazed over eyes looked only to get back out to the sunshine to complain about walking from monument to monument, and then three days in Maryland for a two day baseball tournament in the cold and rain where we lost but went down fighting, he has just asked me, with no arm twisting or reasonably subtle hinting on my part, if I want to stop to visit my father.

Of course I don’t want to stop. We’ve been on the road for hours, but I know it would perk up his day, maybe his week. So I accept the bone my husband has just thrown me, because even though it doesn’t come with chocolate sprinkles, it was very sweet, and not an easy gesture for him.

Emerging from the car, we stretch out like newly popped corn then make our way to his apartment. My boys look at each other with crooked sideway smiles while we wait, listening to the clanking and shouting coming from the other side of the door to let us know that he’s having some troubles, that he can’t even manage to open the door without issue.

Finally, the lock turns and we stand face to face; the five of us looking in on a narrow, cluttered hallway with my father blocking the way, not really meeting our eye since he is hunched over his walker and turned away.

“Hi dad,” I mumble, wanting to kiss him hello but there is some kind of chocolate smudge around his mouth that makes me not want to. Thankfully, the children barrel in and divert his attention. I am saved.

“I have comics for you,” he says and awkwardly moves to follow them, but the wheel of his walker catches on one of the many stacks of books carpeting his floor and he almost pitches over.

“Dad!” I call out, even as he rights himself. As usual, I am tense being here, even more so, watching him maneuver in this unmanageable space. “You have too much stuff on the floor.”

“I know,” he says. “I fell again yesterday.” The ‘again’ hangs like bait but I grind my teeth together.

“Can I move them?” I ask, sucking in deep breaths.

“Hurt myself bad…” He mumbles, talking more to himself. “Not as bad as the other time…”

“Can I move them?” I ask again. This time he hears me and shakes his head.

“No. I’m working through them. They’re not done.”

I sigh but let it go. He’s been ‘working through’ his thousands of collected books and tapes for decades. It’s a tired, old argument.

“I have comic books,” He repeats and my oldest son, bless him, comes over and feigns interest, but unfortunately my father is too busy searching for approval, for something to offer, to notice.

I follow him as he hunts while my family huddles uncomfortably in between chairs, books and boxes, looking for somewhere to escape but there is nowhere to go.

“Dad,” I suggest, and will myself to infuse some warmth into my tone, “Why don’t we go down to the community room for more space.” I’m not sure if I succeeded.

“Okay,’ he agrees and before he can even swivel his walker around, my husband and children have bolted. I wait while he looks for his keys, muttering something about the lost comics. I don’t hurry him. It only stresses him and doesn’t make things go any faster. Finally, he finds them and I step into the hallway to push the elevator button while he locks up.

I watch him, fiddling with the keys, his elbows leaning heavily on the handles of his walker, and even though I know it’s him, I don’t recognize him. He is old at 71. He is unwell, both physically and mentally. He is struggling to hold on but keeps falling.

He wheels himself down toward me, his face lined but full with excess weight, his eyes a murky green, his body hunched and twisted. I am sad for him. So very sad. I might not even be able to wait until I’m alone to cry.

The elevator door opens.

I want to kiss him but I let the chocolate stop me.

Bittersweet

I wish things were this simple and sweet.

.