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Striking out (with Dad)

He didn’t hobble toward ball field number two; he shoved his walker with purpose. Even tilted, he looked pretty good; eyes alert, dress casual and passably clean, disposition aloof but present. After three weeks in New York and countless years fantasizing about it, he finally felt well enough to make one of my boys’ baseball games.

“You gotta swing when it’s 3 and 2, kid!” he yelled at some boy I didn’t know, garnering a dirty look from some boy’s father.

I grimaced. “Dad, maybe keep your enthusiasm for the members of our family, please.”

He smiled,” clearly amused by himself. “Yeah, that guy didn’t appreciate my comment.”

This was the best I had seen my father in a long time and I tried without much success to appreciate the moment.

These last weeks have been enormously stressful. Applications for disability, transportation services and a downstairs unit had to be filled out, the right doctors found, Medicaid benefits approved to secure home health aides, visiting nurses and blah blah blah. We stand at the foot of a mountain of paper work, details and calls not returned.

But by far the biggest challenge is him.

He accidentally flooded the woman’s apartment below him by letting his sink overrun. Then he accidentally did it again. He accidentally pulled the emergency cord in the bathroom. He was confrontational with the nurse practitioner who came to help set up his medications. He didn’t go down to let in another NP.

Never ending, exhausting conversations saturate every space between the dramas. Pep him up, talk him down, find reasons for him to live. Be the happy voice, the scolding voice, the voice of reason. Even thinking about it makes my throat constrict.

Yet right now, he seems okay – his glassy eyes light as he watches the game, my other boys shyly stand near him and engage, he abandons his walker to hold on to the fence.

“Nice catch!” He yells to my son then turns to me, “Do you see the way he throws? He’s got confidence.”

I nod, glad that after weeks passed out in his chair, he’s found his voice and it’s not angry or miserable. It’s cheering.

Maybe we’ve turned a corner. Maybe it’ll be alright.

I allow just the smallest, tiniest, most miniscule molecule of hope to slip in, although at this point I don’t know how it’s even possible. Hope is a sneaky bastard.

The next morning social services call. They had just seen my father and found him extremely agitated and hostile with pills scattered everywhere. They regret to inform me that “mobile crisis” has been alerted and are on the way.

Maybe this is where it ends. Maybe it’s for the best.

At least he made it to a game.

My happy cage

hopeless

Pop (Moving dad, part 2)

My father slumps over to the left side of the new recliner. His head and body tilt in a way that looks uncomfortable but still he sleeps. He’ll tell anyone who asks that he prefers unconsciousness rather than deal with the pain he’s in. I wonder about that as I watch him snoring contentedly. Clearly, he suffers. No one who sees him would think otherwise, but the uncertainty lingers whether this former alcoholic and drug addict has found validation for his pharmaceutical dependency with his broken body and spirit. I know I don’t walk in his shoes but it’s hard when he’s tripping over his own feet and landing on my doorstep.

This new move to be closer to his family, which is me, my brother and my mother, his ex-wife of nearly 35 years, has been years in the making and years in the breaking. The two bridges between us allowed him to live somewhat independently and allowed me to somewhat believe that he could. But now that we have crossed over, there’s no going back and there’s no more pretending.

Large windows brighten the living and bedrooms of his new apartment and the scent of fresh paint lingers. There’s a new couch, television and media center. His hoard of books, tapes, papers and the clutter of a million misaligned brain cells have been left back in New Jersey in this hope for a fresh start, this last attempt at happiness. But seeing him lying there half unconscious with the garden burger he fell asleep while eating hanging limp in his hand;  a small clump of mashed grains, corn and peas probably still waiting in his mouth to choke him or be swallowed, it looks to me like the same problem nicer chair.

When my mother and I test drove the dark brown cushy recliner in the store, we giggled as we pushed a button to gently stretch us back while lifting our legs up, immediately luxuriating in relaxation. It was perfect, we assured each other, thinking he’d love it but not realizing he’d barely leave it.

Now only weeks in, it bears the burden of his physical and mental weight; food staining the arm rest, crumbs resting in the crevices, urine dampening the seat. It is as sullied and doomed as this well-meaning but misguided attempt at a new life.

Back home in my office, I wish I could also just push a button, recline and hide in unconsciousness as I shuffle through papers and field calls from doctors and agencies, all trying to help me help him. The process is arduous, tedious and a little maddening but every conversation hopefully gets me closer to securing a doctor or a home health aide or benefits. It is a puzzle with a million pieces and he sits in the center.

Through the window I watch my boys on roller blades, their newest obsession. My 7 year old has discovered some old bubbles on the porch and blows spit at the stick as he skates around like a puppy. Every so often a cluster of bubbles emerge startling him, flying like rainbows through the air. He delights in his creation, beaming with wonder, and his brothers join him, scooting around trying to pop them. The sun shines, the grass is green and I hope their bubbles never burst.

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Moving Dad

“This is a new life. I want it,” I say to my father who is racked with nerves. “Say it,” I insist.

“This is a new life. I want it,” he repeats dutifully, like a child.

It is the night before his big move from New Jersey to Long Island to be closer us. Even though he lobbied for this, stress emanates from him like the hairs on a caterpillar. He’s so charged, he’s electric.

My doorbell rings and rings and rings interrupting us. It is my husband and two younger boys coming home from the park. My youngest son pokes his big happy face in the side window. His smile is as wide and unrestrained as the curly hair bursting from the sides of the helmet covering his head. He has been practicing on his new roller skates. I open the door and put a finger to my lips. He nods in understanding still beaming, and awkwardly stomps and slides his way to me for a hug to keep from falling down while simultaneously lifting my spirits.

Weeks ago I asked my father to fill a single box with books or tapes that he felt he couldn’t live without, not an easy task for a hoarder.

“Can I have 3 boxes?” He bargained.

“Yes, but let’s start with 1.”

“How about five, can I have five boxes?”

“Probably, but let me see you fill one.”

Yet instead of filling even one box, he spent the weeks negotiating over how many boxes he could take, and then working on stuff to give away. Now the night of the move, he has not packed a single thing. It’s no skin off my nose. His place is a cluttered shit hole. The more stuff he takes, the faster this new place will become a cluttered shit hole.

“Dad, you don’t need those things anymore. Let’s start fresh.”

“But collecting these things is all I’ve accomplished. I know it’s small but it matters.”

He’s regretful, but thankfully still sounds rational and lucid.

“You’ll find new things that matter,” I say looking out the window where my middle son and husband catch the last bits of day tossing the ball back and forth to each other on my overgrown lawn.

“I need to find a purpose. I have no purpose.” He laments. “And I can’t fill these boxes. It’s too hard. It’s too painful.”

“I know,” I soothe, unsure where my new found zen is coming from. I’ve spent these weeks gaining weight, spouting grey and blooming cold sores as I called social services, doctors, and advocates for the elderly. We are blindly jumping ship which isn’t great when you haven’t secured your lifeboat.

“Don’t worry. I’ve bought you all new things. You’ll have everything you need.”

I walk past the computer room where my oldest practices his Haftarah for his upcoming Bar Mitzvah. His sweet voice swells with such beauty and hope I could cry.

“This is a new life,” my father repeats the mantra, trying to muster some enthusiasm, “I want it.”

I look around at the love that is here and think that if this doesn’t put joy in his heart nothing will.

“Good.” I confirm. “Because tomorrow it begins…”

Ready or not... Here he comes.

Ready or not… Here he comes.

Missing Dad

When the call came in from my father’s home health aide, I was on the elliptical machine watching an episode of Housewives. Automatically, I groaned. It was first thing Monday morning; never a good way to start the week.

“Um hey Jolie,” I greeted hesitantly. Would she have found him asleep on the bathroom floor? Would the place have been turned upside down by an evening of semi-conscious wandering? Did he throw her out again?

I tightened for the impending trouble, “What’s up?”

“I can’t find your father.”

I wasn’t expecting that, but still, for all the crazy that went on in my father’s small world, at the moment this was still pretty low on the drama scale. I considered getting off the exercise machine but then decided to power on. I needed a positive place for my stress. And it was my time to exercise.

“Okay,” I said slowly, thinking as fast as I could, “You’ve checked the tub, right? And the floor?” I gave a little laugh. Only in my world, could my father’s frequent trips into unconsciousness be cause for sad humor.

“His walker is still here,” She said, “And the door was slightly open, his meds on the table and his bed was made.”

“His bed was made?” I repeated. It was the most curious and disturbing thing she had said. “So his weekend girl was there at some point but he never slept in the bed.” I stopped pedaling. “Shit.”

I hung up on Jolie to make some calls, while she did a more thorough investigation of his living quarters and surroundings.

My first call was to the home health agency to double check whether the girl had in fact seen him on Sunday. She was a fill-in, so I asked them to double check with her and get back to me.

Still pedaling, I contemplated my continued pedaling. Was I not taking this seriously enough? Should I be pacing? After 20 plus years coping with a mentally and physically challenged parent, I had learned to go flow, which meant keep peddling until I no longer could.

So while my feet moved on, my brain back tracked. He didn’t answer the phone yesterday. I didn’t think much of it at the time, since he often slept through the weekends. The last time we spoke was Saturday, although since he was half asleep, muttered unintelligibly was much more accurate than spoke.

With no one else to call and no other realistic options, I considered the two possible hospitals where he could be and dialed the closer one.

“Hi there, I’m looking for my father. He may have come in there yesterday or this morning?”

I waited while she checked his name.

“Yes, he was brought in yesterday. I’ll transfer you.”

Okay I breathed, missing father found. But why was he there? With his health problems and history, it could be a million things, many of them terrible.

My pace slowed but my heart rate sped up significantly. I was used to hopscotching through the landmines of his life, but while my sensitivity chip was broken it still emitted some charge, and I waited anxiously.  For a fleeting second I thought he could even be dead; a realistic possibility that has loomed over my head for decades, so many in fact, that it almost didn’t seem possible.

Could this be it? Could this be the moment I had become so complacent and emotionally detached from that I didn’t even think to dread. Could the man who a lifetime ago told me stories by the edge of my bed, gave me dollars to tickle his back, charmed me with word and a smile no longer be?

I stopped pedaling. The air became more still. I heard my breath.

A nurse picked up, “Your father is fine.”

I almost laughed with relief and amusement. She clearly didn’t know my father.

“He came in for anxiety and we’re still awaiting psych to release him.”

I began pedaling again. It was just business as usual.

Missing Dad

Missing Dad… since 1992