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Tag Archives: caring for parents

Pop (Moving dad, part 2)

My father slumps over to the left side of the new recliner. His head and body tilt in a way that looks uncomfortable but still he sleeps. He’ll tell anyone who asks that he prefers unconsciousness rather than deal with the pain he’s in. I wonder about that as I watch him snoring contentedly. Clearly, he suffers. No one who sees him would think otherwise, but the uncertainty lingers whether this former alcoholic and drug addict has found validation for his pharmaceutical dependency with his broken body and spirit. I know I don’t walk in his shoes but it’s hard when he’s tripping over his own feet and landing on my doorstep.

This new move to be closer to his family, which is me, my brother and my mother, his ex-wife of nearly 35 years, has been years in the making and years in the breaking. The two bridges between us allowed him to live somewhat independently and allowed me to somewhat believe that he could. But now that we have crossed over, there’s no going back and there’s no more pretending.

Large windows brighten the living and bedrooms of his new apartment and the scent of fresh paint lingers. There’s a new couch, television and media center. His hoard of books, tapes, papers and the clutter of a million misaligned brain cells have been left back in New Jersey in this hope for a fresh start, this last attempt at happiness. But seeing him lying there half unconscious with the garden burger he fell asleep while eating hanging limp in his hand;  a small clump of mashed grains, corn and peas probably still waiting in his mouth to choke him or be swallowed, it looks to me like the same problem nicer chair.

When my mother and I test drove the dark brown cushy recliner in the store, we giggled as we pushed a button to gently stretch us back while lifting our legs up, immediately luxuriating in relaxation. It was perfect, we assured each other, thinking he’d love it but not realizing he’d barely leave it.

Now only weeks in, it bears the burden of his physical and mental weight; food staining the arm rest, crumbs resting in the crevices, urine dampening the seat. It is as sullied and doomed as this well-meaning but misguided attempt at a new life.

Back home in my office, I wish I could also just push a button, recline and hide in unconsciousness as I shuffle through papers and field calls from doctors and agencies, all trying to help me help him. The process is arduous, tedious and a little maddening but every conversation hopefully gets me closer to securing a doctor or a home health aide or benefits. It is a puzzle with a million pieces and he sits in the center.

Through the window I watch my boys on roller blades, their newest obsession. My 7 year old has discovered some old bubbles on the porch and blows spit at the stick as he skates around like a puppy. Every so often a cluster of bubbles emerge startling him, flying like rainbows through the air. He delights in his creation, beaming with wonder, and his brothers join him, scooting around trying to pop them. The sun shines, the grass is green and I hope their bubbles never burst.

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Moving Dad

“This is a new life. I want it,” I say to my father who is racked with nerves. “Say it,” I insist.

“This is a new life. I want it,” he repeats dutifully, like a child.

It is the night before his big move from New Jersey to Long Island to be closer us. Even though he lobbied for this, stress emanates from him like the hairs on a caterpillar. He’s so charged, he’s electric.

My doorbell rings and rings and rings interrupting us. It is my husband and two younger boys coming home from the park. My youngest son pokes his big happy face in the side window. His smile is as wide and unrestrained as the curly hair bursting from the sides of the helmet covering his head. He has been practicing on his new roller skates. I open the door and put a finger to my lips. He nods in understanding still beaming, and awkwardly stomps and slides his way to me for a hug to keep from falling down while simultaneously lifting my spirits.

Weeks ago I asked my father to fill a single box with books or tapes that he felt he couldn’t live without, not an easy task for a hoarder.

“Can I have 3 boxes?” He bargained.

“Yes, but let’s start with 1.”

“How about five, can I have five boxes?”

“Probably, but let me see you fill one.”

Yet instead of filling even one box, he spent the weeks negotiating over how many boxes he could take, and then working on stuff to give away. Now the night of the move, he has not packed a single thing. It’s no skin off my nose. His place is a cluttered shit hole. The more stuff he takes, the faster this new place will become a cluttered shit hole.

“Dad, you don’t need those things anymore. Let’s start fresh.”

“But collecting these things is all I’ve accomplished. I know it’s small but it matters.”

He’s regretful, but thankfully still sounds rational and lucid.

“You’ll find new things that matter,” I say looking out the window where my middle son and husband catch the last bits of day tossing the ball back and forth to each other on my overgrown lawn.

“I need to find a purpose. I have no purpose.” He laments. “And I can’t fill these boxes. It’s too hard. It’s too painful.”

“I know,” I soothe, unsure where my new found zen is coming from. I’ve spent these weeks gaining weight, spouting grey and blooming cold sores as I called social services, doctors, and advocates for the elderly. We are blindly jumping ship which isn’t great when you haven’t secured your lifeboat.

“Don’t worry. I’ve bought you all new things. You’ll have everything you need.”

I walk past the computer room where my oldest practices his Haftarah for his upcoming Bar Mitzvah. His sweet voice swells with such beauty and hope I could cry.

“This is a new life,” my father repeats the mantra, trying to muster some enthusiasm, “I want it.”

I look around at the love that is here and think that if this doesn’t put joy in his heart nothing will.

“Good.” I confirm. “Because tomorrow it begins…”

Ready or not... Here he comes.

Ready or not… Here he comes.

Pick Me U

My car is dead.

So I’m running laps around my block waiting for the tow truck guy and thinking about last Wednesday when I spent over an hour on the phone with my father and his home health aide, Jody, debating whether to call 911.

“I think we should call.” I said. “We’ve let it go for days and it has only gotten worse.”

“I hate the hospital.” My father whimpered like a four year-old.

“I know. But this is worse than your usual terrible.”

“I know.” He submitted. “Okay.”

It was almost too easy. Although my father spends the majority of his life at hospitals or doctor’s offices for his many, many, many conditions, often he ignores typical medical ailments that would send others rushing to the doctor. He constantly says, “Yeah, I know that’s bad, but it’s the least of my problems.” He’s not wrong. When you’ve got as many problems as he does, you learn to pick and choose. So when my father concedes that he should go to the hospital, he should go. This must be worse than I thought.

Jody called for an ambulance and they went to the hospital. I was home with Julius (the other boys hopefully enjoying their second day of school), contemplating what to do. Should I go to the hospital? I certainly didn’t want to. It was usually a long wait and my father was a miserable patient. I would have to find coverage for Julius and possibly the bus, if I couldn’t get back in time. He was there with his home health aide. The dual sides of my brain battled it out. Go. Don’t go. He has been hospitalized so many times, for so many things. Every day is something new. Don’t go. The last time I went for a procedure a couple of weeks ago, I spent hours in traffic, more hours sitting around waiting and he barely spoke to me. Don’t go. He doesn’t have anyone. Go. He’s suffering. Go. He’s always suffering. Don’t Go.

Ultimately, the car decided it. I got in and it wouldn’t turn over. It was dead.

So I spent the day on the phone with doctors and the hospital until he was admitted and we had some idea what we were working with. In between, AAA came and towed my car away. They said it was the starter. Sick dad. Sick car.

Yep, last Wednesday was fun, but now it is Monday. I’m running circles around my block, exercising my body and my brain, once again waiting for AAA and a doctor’s call. What will it be this time? I contemplate the problem, the diagnosis, the trouble. When will it end? Will it ever be fixed? It’s never-ending; the same thing but different.  I am stuck, stranded, alone, unsure of what to do, unable to leave, unable to go. Trapped. Just keep running. Around I go.

My dad is in the hospital.

My car is dead.

Towing #1

Towing #2

This man actually towed my car both times. Ground hog day. Ground hog life.