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Tag Archives: mental illness

Striking out (with Dad)

He didn’t hobble toward ball field number two; he shoved his walker with purpose. Even tilted, he looked pretty good; eyes alert, dress casual and passably clean, disposition aloof but present. After three weeks in New York and countless years fantasizing about it, he finally felt well enough to make one of my boys’ baseball games.

“You gotta swing when it’s 3 and 2, kid!” he yelled at some boy I didn’t know, garnering a dirty look from some boy’s father.

I grimaced. “Dad, maybe keep your enthusiasm for the members of our family, please.”

He smiled,” clearly amused by himself. “Yeah, that guy didn’t appreciate my comment.”

This was the best I had seen my father in a long time and I tried without much success to appreciate the moment.

These last weeks have been enormously stressful. Applications for disability, transportation services and a downstairs unit had to be filled out, the right doctors found, Medicaid benefits approved to secure home health aides, visiting nurses and blah blah blah. We stand at the foot of a mountain of paper work, details and calls not returned.

But by far the biggest challenge is him.

He accidentally flooded the woman’s apartment below him by letting his sink overrun. Then he accidentally did it again. He accidentally pulled the emergency cord in the bathroom. He was confrontational with the nurse practitioner who came to help set up his medications. He didn’t go down to let in another NP.

Never ending, exhausting conversations saturate every space between the dramas. Pep him up, talk him down, find reasons for him to live. Be the happy voice, the scolding voice, the voice of reason. Even thinking about it makes my throat constrict.

Yet right now, he seems okay – his glassy eyes light as he watches the game, my other boys shyly stand near him and engage, he abandons his walker to hold on to the fence.

“Nice catch!” He yells to my son then turns to me, “Do you see the way he throws? He’s got confidence.”

I nod, glad that after weeks passed out in his chair, he’s found his voice and it’s not angry or miserable. It’s cheering.

Maybe we’ve turned a corner. Maybe it’ll be alright.

I allow just the smallest, tiniest, most miniscule molecule of hope to slip in, although at this point I don’t know how it’s even possible. Hope is a sneaky bastard.

The next morning social services call. They had just seen my father and found him extremely agitated and hostile with pills scattered everywhere. They regret to inform me that “mobile crisis” has been alerted and are on the way.

Maybe this is where it ends. Maybe it’s for the best.

At least he made it to a game.

My happy cage

hopeless

Missing Dad

When the call came in from my father’s home health aide, I was on the elliptical machine watching an episode of Housewives. Automatically, I groaned. It was first thing Monday morning; never a good way to start the week.

“Um hey Jolie,” I greeted hesitantly. Would she have found him asleep on the bathroom floor? Would the place have been turned upside down by an evening of semi-conscious wandering? Did he throw her out again?

I tightened for the impending trouble, “What’s up?”

“I can’t find your father.”

I wasn’t expecting that, but still, for all the crazy that went on in my father’s small world, at the moment this was still pretty low on the drama scale. I considered getting off the exercise machine but then decided to power on. I needed a positive place for my stress. And it was my time to exercise.

“Okay,” I said slowly, thinking as fast as I could, “You’ve checked the tub, right? And the floor?” I gave a little laugh. Only in my world, could my father’s frequent trips into unconsciousness be cause for sad humor.

“His walker is still here,” She said, “And the door was slightly open, his meds on the table and his bed was made.”

“His bed was made?” I repeated. It was the most curious and disturbing thing she had said. “So his weekend girl was there at some point but he never slept in the bed.” I stopped pedaling. “Shit.”

I hung up on Jolie to make some calls, while she did a more thorough investigation of his living quarters and surroundings.

My first call was to the home health agency to double check whether the girl had in fact seen him on Sunday. She was a fill-in, so I asked them to double check with her and get back to me.

Still pedaling, I contemplated my continued pedaling. Was I not taking this seriously enough? Should I be pacing? After 20 plus years coping with a mentally and physically challenged parent, I had learned to go flow, which meant keep peddling until I no longer could.

So while my feet moved on, my brain back tracked. He didn’t answer the phone yesterday. I didn’t think much of it at the time, since he often slept through the weekends. The last time we spoke was Saturday, although since he was half asleep, muttered unintelligibly was much more accurate than spoke.

With no one else to call and no other realistic options, I considered the two possible hospitals where he could be and dialed the closer one.

“Hi there, I’m looking for my father. He may have come in there yesterday or this morning?”

I waited while she checked his name.

“Yes, he was brought in yesterday. I’ll transfer you.”

Okay I breathed, missing father found. But why was he there? With his health problems and history, it could be a million things, many of them terrible.

My pace slowed but my heart rate sped up significantly. I was used to hopscotching through the landmines of his life, but while my sensitivity chip was broken it still emitted some charge, and I waited anxiously.  For a fleeting second I thought he could even be dead; a realistic possibility that has loomed over my head for decades, so many in fact, that it almost didn’t seem possible.

Could this be it? Could this be the moment I had become so complacent and emotionally detached from that I didn’t even think to dread. Could the man who a lifetime ago told me stories by the edge of my bed, gave me dollars to tickle his back, charmed me with word and a smile no longer be?

I stopped pedaling. The air became more still. I heard my breath.

A nurse picked up, “Your father is fine.”

I almost laughed with relief and amusement. She clearly didn’t know my father.

“He came in for anxiety and we’re still awaiting psych to release him.”

I began pedaling again. It was just business as usual.

Missing Dad

Missing Dad… since 1992

You got to go with Aunt Flo. Or she will destroy you.

My Aunt Flo is due to visit tomorrow, and I have to say I’m just a bundle of anxiety. I don’t know why I’m surprised. It’s always like this, even though she comes every month. Still, somehow I’m consistently taken off guard and unprepared for her visit. I fidget nervously. I’m a bit on edge. Nothing seems right and I have to fix everything before she arrives. Everything!

The pictures on the wall have magically all tilted overnight, and there’s cat hair all over the place. It’s also apparently too difficult for anyone to put their cereal bowls in the sink, or manage to reach the hamper with their dirty underwear. Seriously, are those extra two inches just too much?

Don’t they realize the stress I’m under? She’ll be here any minute.

“Is something wrong?” My husband asks, as I straighten the toys up for the kabillenth time, huffing and puffing and deep sighing, tossing toys with gusto into their bins. Stupid Superman figure. His face is so annoying. He makes me sick. I hurl him into the bin.

“What do you mean?” I snap. “Nothing’s wrong. It’s the same old wrong of every day. Why are you badgering me?!”

He looks afraid, and slowly backs away.

“Where is the freaking phone?” I yell to the air. I was holding it a second ago. A second! Oh, it’s still in my hand. My bad.

There’s too much to do. I need something to eat. And it has to be sweet. I need it right now. I head to freezer and take out my ice cream tub and spoon out five scoops to my usual three, then reconsider, and add another scoop.  I shove the container back into the freezer but something is wrong. It doesn’t close properly no matter how much I slam it. I slam it again! It’s not closing! I can not deal with that right now! I need to eat.

I’m consuming my bowl unconsciously; my brain thinking ahead of all the things that need to be done that aren’t done, and all the things wrong that might never be right, when my son comes in and asks for a cup of milk.

I nod, and reach into the fridge, but there is no milk. There is no milk! How did I let that happen? I’m usually so on top of stuff like that. I am a terrible mom. How do I not have milk for my children?

Tears start to well.

“I’ll have juice, mommy.” My son says, sensing my distress. Overwhelmingly grateful for my sensitive child, I hand him a little box of juice and he runs away happy. He’s so good and sweet. I’m so bad and disgusting.

When my husband comes back in, he finds me sobbing, kicking the freezer door trying to close it.

Tentatively, he steps towards me.

“There’s no milk,” I say.

“It’s okay.” He soothes. He’d better not laugh. If he does, I might kick him next.

I take a deep breath to regroup, and find my ice cream.

It’s all Aunt Flo. She’s making me crazy.

Because the only thing worse than waiting for Aunt Flo is when Aunt Flo is late.

nostalgictelevision.blogspot.com

Sometimes, you’ve got to go with the Flo. 

photo credit: nostalgictelevision.blogspot.com

 

Life is beautiful… if you stay in your bubble

For years, a decade maybe, my father has been hawking us to purchase a generator. He’s not a well man, emotionally, physically, financially; but the one thing he does have is a healthy dose of paranoia. I’ve been on the receiving end of countless battery packs, fire extinguishers, flares, safety kits, survival books (Want to know what to if a bear attacks?), walkie-talkies, flash lights, crank radios and all sort of protective paraphernalia. A few years ago, when moving him from one apartment to another, I found gas masks, a shotgun* and an actual oxygen machine. He had no idea how to use any it, but he just had to have it.

I don’t mind most of the stuff. I mean, who can argue band aids or batteries. I am just overly sensitive, and at the same time, desensitized to his obsessive paranoia. Hurricanes are coming. Terrorist attacks are coming. Okay. I believe as my grandmother did, “What will be, will be.” We were displaced for 10 days during Sandy.  I’ll admit, I eyed the house across the street with the humming generator, but we were all fine – a little cold and inconvenienced, but fine. Actually, I thought the whole thing was a good bonding experience.

My father chides me for my complacency. For the bubble I choose to inflate around myself and my family. In his mind, devastation is right around the corner. This week he was right. Devastation. So close, I feel it tighten my chest, and start to swell into a mass of overwhelming emotion every time I give the thought a second to grow.

So I’ve made a conscious effort to not watch the news or read the papers. I don’t know if this is wrong, but when a headline passes my eye or, like this morning, when I caught a snippet on the radio while driving to the gym, I just lose it. I can’t even think about it. I really can’t.

There are now big, gaping holes in my bubble, and it threatens to collapse and suffocate me. I have always been keenly aware of the fragility of life. There are already so many things to worry about when we put our children and ourselves out into the world. This is just too much, because really, there is no protection from random acts of insanity. There are measures, there are steps, there is protocol. It all helps, and provides some sense of safety. Really though, we are all so vulnerable and exposed, and that is beyond frightening. All I can do is frantically patch the holes with hope and denial, hug my family tight, and pray that I never hear a pop.

A generator can’t offer my family any real protection, so I just don’t have the energy to care.

bubbles

*After a huge battle with my father, the shotgun, along with a bunch of other stuff, was properly disposed of, but that’s another story.

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