RSS Feed

Tag Archives: aging parent

Pop (Moving dad, part 2)

My father slumps over to the left side of the new recliner. His head and body tilt in a way that looks uncomfortable but still he sleeps. He’ll tell anyone who asks that he prefers unconsciousness rather than deal with the pain he’s in. I wonder about that as I watch him snoring contentedly. Clearly, he suffers. No one who sees him would think otherwise, but the uncertainty lingers whether this former alcoholic and drug addict has found validation for his pharmaceutical dependency with his broken body and spirit. I know I don’t walk in his shoes but it’s hard when he’s tripping over his own feet and landing on my doorstep.

This new move to be closer to his family, which is me, my brother and my mother, his ex-wife of nearly 35 years, has been years in the making and years in the breaking. The two bridges between us allowed him to live somewhat independently and allowed me to somewhat believe that he could. But now that we have crossed over, there’s no going back and there’s no more pretending.

Large windows brighten the living and bedrooms of his new apartment and the scent of fresh paint lingers. There’s a new couch, television and media center. His hoard of books, tapes, papers and the clutter of a million misaligned brain cells have been left back in New Jersey in this hope for a fresh start, this last attempt at happiness. But seeing him lying there half unconscious with the garden burger he fell asleep while eating hanging limp in his hand;  a small clump of mashed grains, corn and peas probably still waiting in his mouth to choke him or be swallowed, it looks to me like the same problem nicer chair.

When my mother and I test drove the dark brown cushy recliner in the store, we giggled as we pushed a button to gently stretch us back while lifting our legs up, immediately luxuriating in relaxation. It was perfect, we assured each other, thinking he’d love it but not realizing he’d barely leave it.

Now only weeks in, it bears the burden of his physical and mental weight; food staining the arm rest, crumbs resting in the crevices, urine dampening the seat. It is as sullied and doomed as this well-meaning but misguided attempt at a new life.

Back home in my office, I wish I could also just push a button, recline and hide in unconsciousness as I shuffle through papers and field calls from doctors and agencies, all trying to help me help him. The process is arduous, tedious and a little maddening but every conversation hopefully gets me closer to securing a doctor or a home health aide or benefits. It is a puzzle with a million pieces and he sits in the center.

Through the window I watch my boys on roller blades, their newest obsession. My 7 year old has discovered some old bubbles on the porch and blows spit at the stick as he skates around like a puppy. Every so often a cluster of bubbles emerge startling him, flying like rainbows through the air. He delights in his creation, beaming with wonder, and his brothers join him, scooting around trying to pop them. The sun shines, the grass is green and I hope their bubbles never burst.

IMG_0311

You really can’t dance in glass slippers

I can’t think.

My oldest, middle and youngest sons all have friends over. They are downstairs playing basketball. Boom boom boom. They are up in the living room playing SmashBrother on the WiiU while rummaging through leftover Valentine’s chocolates. Munch munch munch. They are up and down the stairs playing hide and seek. Stomp stomp stomp.

I go around picking up empty crushed water bottles and discarded heart boxes and am happy to find a few chocolates half hidden under the crinkly brown paper shells. On closer inspection, I notice they all have little finger indentures revealing brightly colored cream inside. Orange. Ugh.

The boys are loud, squealing with delight as they find each other hidden behind furniture and under tables, and they are loud, yelling with outrage over a missed turn on the X Box or a controversial point.

But they aren’t the reason for my poor cognitive functions.

I have a headache.

I don’t have a headache.

I have stress.

Jeez, I’m so dramatic. I don’t have so much stress. I live a cushy life, baking brownies for my kids, volunteering at the schools, watching their sport games and writing in between.  Occasionally I meet a friend for sushi lunch and indulge in a massage. I am like a princess. Cinderella? I do have an awful lot of laundry. Snow White? There are all those little people I cater to. Fiona? Well, I’ll just leave that one to your imagination.

No. I am princess Ice Scream Mama and my life is a fairy tale in so many ways but alas every fairy tale must have its wolf.

His name is dad.

More fiery than a dragon. More insecure than an evil queen. More suffering than any beast. He is dangerous and inconsistent. He is desperate for sorcerer’s magic potion or the kiss of true love. Who could blame him? They have the power to heal even the most wounded souls.  If you just click your heels and believe…

I wish I could but I lost my ruby red slippers trying to climb out of the tower I’ve been imprisoned for decades. If only I could let down my hair and just let it go, but this beanstalk isn’t going to climb itself. The sky is falling, the woods grow dark and it’s a long way up to a giant problem and believe me there are no golden harps to steal. Not that I would. Jack is a thieving, greedy pig.

Once upon a time I believed in magic, but now know that happily ever after is about acceptance and compromise, finding the good in the bad, not running away from either the old man and the old woman who want to save you, or the farmers, the bear and the fox who want to eat you. It’s about facing the truths in life and appreciating the reality, not the fantasy, but still leaving room to dream.

But what am I saying?

It’s all the noise.

I make no sense.

I think.

Dang! This thing doesn't work!

Dang! I need a new wand!

*Hey all, give a click here and check out my original essay up on Mamalode, A Mother of Mama’s Boys Grows Up. 🙂

Wait for it….

“I can’t believe he hasn’t called back yet.” My father says, his voice slow and heavy with the weight of his misery. “I’ve left multiple messages.”

I have as well but this doctor is notoriously bad at returning calls and his staff, one overwhelmed woman with an edge of defensive indignation is possibly worse. Yet for two years my father has been under their haphazard care. We should have found another doctor by now, but my father is kind of haphazard himself.

“I’ll try again,” I say, hoping to get some answers but really just wanting to get off the phone and get something done. It’s been 28 minutes on this road with little if any progress. Really it’s been 20 years.

“Okay, but wait…” he stalls, hoping to drag out a little more time with me. “I’ve got these papers we should talk about…”

I hear some shuffling and the phone drops.

“Ow!”He yelps from a distance and I hear more scurrying about. I make an effort not to roll my eyes while compulsively unraveling my third piece of gum. It’s better than the ice cream tub calling my name.

This doctor has one last carrot he’s been swinging over my father’s head to ease his chronic pain. It’s a new experimental drug; one that’s supposed to be even more effective than morphine. He brought it up in October, scheduled the trial a few weeks later then abruptly canceled it. Now three months of hemming, hawing and wait, wait, wait has left my father as wilted as the carrot. Still, he’s chomping at the bit, always looking for the thing that’s going to save him. I wish I believed something could save him.

“Dad,” I call out, even though I know it’s useless. Still, I’m slow to learn that nothing about him or our conversations can be rushed.

“Okay?” I ask after a few minutes when labored, exasperated breaths signal his return.

“No,” Is his immediate response, then “Yes. No. Yes. Hold on, I need to…”

“Dad!” I cut in before he leaves me hanging again, “I’m going to call him now. I’ll call you back,” I say and quickly hang up.

With one breath doubling as a stress reliever and a confidence builder, I go to dial the doctor on his personal cell. Even though he has been irresponsible returning calls and giving information, I’m still embarrassed about using the personal number he gave me awhile back. It makes me angry. Why can’t people just do what they’re supposed to do?

Amazingly he answers on the third ring. Although he is clearly not happy to hear from me, after months of runaround, I finally nail him down to a day for the trial. Right before we hang up I think to ask the name of the drug. I can’t believe in all this time I never asked.  But I actually can. Managing my father’s life is like throwing a sheaf of paper into the air. You just deal with the ones that fall in your lap first.

“I’m blanking on the technical name…” The doctor pauses and struggles until finally it hits him. I kind of wish I could hit him. “It’s Zinconosomething. Just look up Snail pain relief.”

“Snail pain relief.” I repeat and shake my head disbelieving.  Of course.

The Universe always knows when I need a good laugh.

Yeah, it's true.

Yeah, it’s true. Click if you want to read about it.

Laugh Till You Cry

Almost in tears. Hate my father – scratch that – hate who my father is – better. He’s got one foot off a cliff and wants me to pull him down to safety, as usual. And as usual, I probably pushed the other one off instead, with my words, which were as frustrated as he is. “Get help!” But that’s why he’s calling me.

Breathe deeply. Think about mountains in Tibet, waterfalls, rainbows, ice cream. Need to call him back. His cell phone rang in the middle of our heated conversation. He was on an edge, his voice high with emotion. I won’t say from the drugs he is on.  “No-one cares. I’m worthless. It’s all wrong.”

“Is there something I can do?” There’s nothing I can do. “Maybe we should call Dr. R.”  Dr. R is his psychiatrist. There’s nothing he can do.

He snaps like Hyde awaked from his long sleep. “I wasn’t asking for advice!”

Uh oh. I automatically open the freezer. “I wasn’t really offering any. I was just trying to help.”

Him, yelling, “You can stop trying to help! I wasn’t asking for help! Why do you always think I’m asking for help?!”

My heart beating with anxiety. -“Ooookay.” I wish there was someone else he could call.

That’s when his cell rang, which he tried to pick up, but somehow picked me up again instead. I know, two different phones, don’t expect things to make sense. Final words, “I can’t believe I screwed up again!” Sad, pitiful, and the phone goes dead.  Tibet. Rainbows. Ice cream.

For me, It’s been over 20 years of pain. Over 20 years being the daughter of a man in pain. A sad man in pain. A suffering man in pain. The pain is in his body. The pain is in his head. The pain is in his heart.

We speak often. Too often for me, not often enough for him, and the calls are all desperation and need, cries for help and cries for attention.

Earlier today, he was grappling with his dwindling legacy. His fear of being considered a drug addict. Of what would be on his tombstone. For decades, he reinforced to me that he wanted his tombstone to say, “He rode the white horse.” He has quite the image of himself, romantic and dramatic, quite like him. Of course, for me at this point, the white horse is muddied, and after slumping over for a while, its rider fell off and not with a quick thump. He fell off howling, with his foot stuck in the stirrup and is still being dragged behind.

He casually mentions that if they found him at the base of a building that he wouldn’t have jumped, that it would have been an accident. You would think this mingling of tombstones and vague suicide talk would have me calling 911, but red flags barely get notice anymore. Those flags need to be shooting rocket fire to gather any real attention.

“So you now want your tombstone to say, “He didn’t jump?” I joked and he did something of a laugh. With a father like mine you look for levity wherever you can, even in suicide talk. “Yeah,” he says, the mood automatically lighter. “That works.”

In that one second, it all changed. It was better. “He didn’t jump off the white horse” He adds, “He was pushed!” And then, he’s laughing.

Where there is humor, there is hope. I’ll call him back now. We both need to laugh.