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Wait for it….

“I can’t believe he hasn’t called back yet.” My father says, his voice slow and heavy with the weight of his misery. “I’ve left multiple messages.”

I have as well but this doctor is notoriously bad at returning calls and his staff, one overwhelmed woman with an edge of defensive indignation is possibly worse. Yet for two years my father has been under their haphazard care. We should have found another doctor by now, but my father is kind of haphazard himself.

“I’ll try again,” I say, hoping to get some answers but really just wanting to get off the phone and get something done. It’s been 28 minutes on this road with little if any progress. Really it’s been 20 years.

“Okay, but wait…” he stalls, hoping to drag out a little more time with me. “I’ve got these papers we should talk about…”

I hear some shuffling and the phone drops.

“Ow!”He yelps from a distance and I hear more scurrying about. I make an effort not to roll my eyes while compulsively unraveling my third piece of gum. It’s better than the ice cream tub calling my name.

This doctor has one last carrot he’s been swinging over my father’s head to ease his chronic pain. It’s a new experimental drug; one that’s supposed to be even more effective than morphine. He brought it up in October, scheduled the trial a few weeks later then abruptly canceled it. Now three months of hemming, hawing and wait, wait, wait has left my father as wilted as the carrot. Still, he’s chomping at the bit, always looking for the thing that’s going to save him. I wish I believed something could save him.

“Dad,” I call out, even though I know it’s useless. Still, I’m slow to learn that nothing about him or our conversations can be rushed.

“Okay?” I ask after a few minutes when labored, exasperated breaths signal his return.

“No,” Is his immediate response, then “Yes. No. Yes. Hold on, I need to…”

“Dad!” I cut in before he leaves me hanging again, “I’m going to call him now. I’ll call you back,” I say and quickly hang up.

With one breath doubling as a stress reliever and a confidence builder, I go to dial the doctor on his personal cell. Even though he has been irresponsible returning calls and giving information, I’m still embarrassed about using the personal number he gave me awhile back. It makes me angry. Why can’t people just do what they’re supposed to do?

Amazingly he answers on the third ring. Although he is clearly not happy to hear from me, after months of runaround, I finally nail him down to a day for the trial. Right before we hang up I think to ask the name of the drug. I can’t believe in all this time I never asked.  But I actually can. Managing my father’s life is like throwing a sheaf of paper into the air. You just deal with the ones that fall in your lap first.

“I’m blanking on the technical name…” The doctor pauses and struggles until finally it hits him. I kind of wish I could hit him. “It’s Zinconosomething. Just look up Snail pain relief.”

“Snail pain relief.” I repeat and shake my head disbelieving.  Of course.

The Universe always knows when I need a good laugh.

Yeah, it's true.

Yeah, it’s true. Click if you want to read about it.

My Call of Duty

He’s waiting for my call.

I can see him, crouched over on his bed, trying to rouse himself out of his stupor; hoping a call from me will do the trick, maybe give him some reason to wake up.

I don’t want to call.

I haven’t wanted to call in years. Decades, maybe. But it’s not about what I want, it’s about what he needs. And what he needs is for me to check in on him daily, just to show him someone still cares, that someone is interested in whether he lives or dies. And that someone is me. There is nobody else.

He had his home health aide there earlier but he slept through her entire shift, and now he’s woken up alone. The table is covered with medications of all colors and sizes. The room is littered with books and papers and boxes of clutter. Ash from the cigarettes he shouldn’t be smoking dusts the room.

Getting from the bed to the bathroom is a dangerous escapade with his weakened legs and broken body. Through heavily medicated eyes, he considers his path. It is all so overwhelming, he allows himself the pleasure of closing them.  Sleep is a beautiful thing.

By the time he opens them again, it is over 20 minutes later, but he doesn’t feel the passage of time. He generally doesn’t feel anything, but of course, the pain. And a nagging urge for the bathroom. He considers his walker a few feet away. He should use it for support. He has fallen at least three times this week, and his body is sore from the damage. He can’t fall again.

He wonders if it’s his body that breaks down and then he falls, or his brain that loses focus causing him to fall. Probably both. More than once, he has been woken by his home health aide on the floor, where he fell. The effort to get back up is too much. The frustration unspeakable.

He eyes the walker. In this crowded space, it can be as much an asset as a detriment. Is he strong enough to go it alone? A heavy, head drooping sigh causes him to look down at his feet and notice the rash creeping up his legs. Problems, everywhere he looks. His glance focuses in on the ice cream he took out hours ago, melted on the counter. Oh well. He can pour cereal in it and have it for breakfast, if he ever gets up.

He begins to close his eyes again, telling himself he needs just a little more rest before he makes the attempt, but really he’s just unable to find the motivation to move himself.

The phone rings, distracting his thoughts, waking him a bit, taking him to a more hopeful place.

He’s waiting for my call.

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Laugh Till You Cry

Almost in tears. Hate my father – scratch that – hate who my father is – better. He’s got one foot off a cliff and wants me to pull him down to safety, as usual. And as usual, I probably pushed the other one off instead, with my words, which were as frustrated as he is. “Get help!” But that’s why he’s calling me.

Breathe deeply. Think about mountains in Tibet, waterfalls, rainbows, ice cream. Need to call him back. His cell phone rang in the middle of our heated conversation. He was on an edge, his voice high with emotion. I won’t say from the drugs he is on.  “No-one cares. I’m worthless. It’s all wrong.”

“Is there something I can do?” There’s nothing I can do. “Maybe we should call Dr. R.”  Dr. R is his psychiatrist. There’s nothing he can do.

He snaps like Hyde awaked from his long sleep. “I wasn’t asking for advice!”

Uh oh. I automatically open the freezer. “I wasn’t really offering any. I was just trying to help.”

Him, yelling, “You can stop trying to help! I wasn’t asking for help! Why do you always think I’m asking for help?!”

My heart beating with anxiety. -“Ooookay.” I wish there was someone else he could call.

That’s when his cell rang, which he tried to pick up, but somehow picked me up again instead. I know, two different phones, don’t expect things to make sense. Final words, “I can’t believe I screwed up again!” Sad, pitiful, and the phone goes dead.  Tibet. Rainbows. Ice cream.

For me, It’s been over 20 years of pain. Over 20 years being the daughter of a man in pain. A sad man in pain. A suffering man in pain. The pain is in his body. The pain is in his head. The pain is in his heart.

We speak often. Too often for me, not often enough for him, and the calls are all desperation and need, cries for help and cries for attention.

Earlier today, he was grappling with his dwindling legacy. His fear of being considered a drug addict. Of what would be on his tombstone. For decades, he reinforced to me that he wanted his tombstone to say, “He rode the white horse.” He has quite the image of himself, romantic and dramatic, quite like him. Of course, for me at this point, the white horse is muddied, and after slumping over for a while, its rider fell off and not with a quick thump. He fell off howling, with his foot stuck in the stirrup and is still being dragged behind.

He casually mentions that if they found him at the base of a building that he wouldn’t have jumped, that it would have been an accident. You would think this mingling of tombstones and vague suicide talk would have me calling 911, but red flags barely get notice anymore. Those flags need to be shooting rocket fire to gather any real attention.

“So you now want your tombstone to say, “He didn’t jump?” I joked and he did something of a laugh. With a father like mine you look for levity wherever you can, even in suicide talk. “Yeah,” he says, the mood automatically lighter. “That works.”

In that one second, it all changed. It was better. “He didn’t jump off the white horse” He adds, “He was pushed!” And then, he’s laughing.

Where there is humor, there is hope. I’ll call him back now. We both need to laugh.